Activity Stream

I live in Hudson, Florida (an hour north of Sarasota) and I am having the exact same issue as you. I was born with SB myelomeningocele and now at 43...

Most apartment buildings have to have some units that are handicapped accessible. But be careful just because they say there accessible don't assume...

That definitely makes me feel some better. Thank you. I think the reason I was worried about a lumbar puncture was because my family doctor mentioned...

Welcome! Hopefully our Florida peeps will check in soon.

Yes, you should have them check for Chiari. And really -- you shouldn't worry about a lumbar puncture. They would only have to do that (I believe) if...

Please let us know what you learn; we're here to listen and help! Oh, and you might contact this organization --...

Thankfully, I do have very good insurance through my company. I know i need to be seen sooner but honestly I'm a little afraid. I'm a big baby when...

Hi Jenny, Welcome aboard! :happy065: Folks who are familiar with you part of the world will surely be around soon with advice.

thanks everyone for replies, definitely need more answers, am going to book another scan privately for second opinion, when I get amnio results will...

I found two in San Antonio that claim to be handicapped accessible. BestLimoDB...

Dahlia, are you thinking of someting like this? A palanquin? http://www.legio-prima-germanica.de/saenfte.htm I think that one would make a glorious...

Go Gaga! :bluesbrothers:

I would be very concerned about the drainage you describe and your persistent headaches. You really do need to be seen before July 5 if possible --...

So glad you found us! I have never heard of SB (any form) being diagnosed before 16 weeks. But what I have heard a lot of is doctors giving an...

Welcome here... I can imagine what you've been through. We found out around week 20/21. The amniocentesis will check for other genetic disorders...

A few things come to mind. First, find a different doctor, a perinatologist or other specialist who deals with high risk pregnancies/babies. I have...

Being a full-time wheelchair user since toddler-hood, limos are not exactly comfortable. I've ridden in one before for a school function and it was...

I found a video on youtube discussing and showing the limo I mentioned! There's a number available ( that they show) and you can call to inquire...

I don't know anything about actually having a baby with spina bifida but I personally have it myself. I can tell you my Mom was told I would never...

Seeing as how I don't know much myself, isn't it possible that the baby's body could do a self correcting during gestation? I mean it is 12 weeks...

Thanks for reply! am very confused! day after scan i got an Amniocentesis test and i have to wait two more weeks for the results. I was told i had...

Welcome! Please take a deep breath and let us know more about what exactly you were told. SB so severe that the baby has 0% chance of surviving...