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This won't be much help but I dislocated both hips as a baby. Mum said I was in a full body plaster for a while.

Hi i am feeling better after getting meds from doc. I wanted to know if anyone used any head shaper cushions. As my babys head looks very long and...

I don't know about the U.S, but they don't do that here. I was told not to attend a Hen's party because of 3 steps as it was "an insurance risk"....

Hi, It is not a must someone got S1 damage then all functions of S2-S5 being lost. The final outcome depend on whether the trunk (the spinal cord)...

Reiterating the bathroom issue. If she is unable to access the bathroom, then there will be trouble. Those issues, more than mobility in general,...

I've been in a limo before, but I don't use a wheelchair. If I had known about this maybe two weeks ago, I'd have asked somebody at the Spina Bifida...

I could've sworn that there was a mention of a wheelchair accessible limo in New Mobility magazine. For the life of me, I thought there was. I'm...

Make sure the place is wheelchair accessible and that there are no stairs, and if there are, make sure there are some cute boys around to help carry...

Make sure there's an accessible bathroom and an entrance without stairs.

Since you mention balloons... ask her if she has a latex allergy. A large percentage of people with Spina Bifida are allergic to latex (balloons,...

I excercised my Google-fu and found only one possible lead: San Antonio Wheelchair Transportation: (210) 260 6740 Dodge Grand Caravan - equipped...

I don't think a limo would be possible. I've never been in one (I'm also in a wheelchair) but aren't the doors a bit far from the seats? So you would...

Thanks for all of the information guys, I really appreciate it!

I don't really know if what he had is considered a urological exam, I am still really new to all of this, but they did do an ultrasound of his...

My first stop for muscle and/or tendon injury issues is a physiotherapist, I don't know about the UK, but here a PT can refer one to a specialist...

Let me know if you try and get added to the page. It is set to private, so I can let the admin of the page to allow you on.

I don't get on this site anymore, but I did get an email you replied. If you ever find your way on FB there is a group with many other families with...

I would suggest a referral to a specialist. I've torn a tendon in my shoulder before and it is painful. I was given an injection into the shoulder...

Oh so frustrating! First the good news the MRI I received in the ER was sent to my neurologist and he compared it to the last one I had 2 years ago...

Welcome on board Crystal! :happy065: I'm afraid that your posts on some of the old OEIS topics may not get a response from the original posters -...

I know quite a few people with MS, and one in particular who has MS and Spina Bifida.

So exciting! Congrats!

Thanks Tigerle. I appreciate the support. I feel the same relief, appropriate or not, in finding out about MS as I felt when my mother told me...

My name is Crystal and I have a 9 year old daughter with OEIS. She is a beautiful, happy child and it has been quite an eventful 9 years for us all!...

This is my first time on this site, so I hope you come back and find this. I have a 9 year old daughter with OEIS. It has been a strange, scary and...