View Full Version : Recently Diagnosed
- Matilda's Meningocele Update!
- Need advice about AFOs and other matters
- CT Scan VS. MRI
- zoloft
- ICP Bolt.
- Need some Motherly advice
- Teen mum @ 34 weeks
- Questions to ask the doctors
- something on scar
- offer of support from an adult with SB...
- the perfect gift for new parents of a child with a disability
- Induction date confirmed! Baby Boo will be here next week!
- SB and Seizures
- Baby Vincent Update/question
- Recently Diagnosed- June 1st
- Newly diagnosed. Sacral SB, 2 clubbed feet. HELP!
- Shameless Pic/Thinking of posting This link on my website.
- 1st Neurosurgeon visit
- Question about babys size ???
- AFP Levels
- is der a possibility or chance to be able to walk
- Types of Spina Bifida
- Dominika and Oliwia
- Hello everyone!
- Afo???
- Questions
- So Im getting closer to my due date!!
- Foster mum welcoming any suggestions
- Freya Grace (Baby Boo) is here!
- 25 weeks pregnant with sb baby
- Moving
- 21 weeks pregnant
- drs just seem to get worse and worse
- Diagnozed with Spina Bifida and Tethered Spinal Cord at Age 68
- Helpless - What do i do?
- Were you diagnosed with Spina Bifida as an adult
- May seem like an odd question
- 2 1/2 year old son with SB and tracheostomy
- adoption of child with meningocele
- Our little girl was diagnosed with Myelomeningocele
- Update on our angel
- Hydrocephalus
- wanting to learn as much as possible
- Advice needed please
- MRI Results?
- Any advice? Possible diagnosis of severe abnormalities
- 21 weeks pregnant with newly diagnosed SB baby HELP!
- So scared, not even "officially" diagnosed. Should I get the amnio
- Update on official diagnosis of baby David
- back surgery... what actually happens
- Lots of questions!
- New baby with sb
- New Here!
- Shopping for baby
- concerned about 10 year old boy
- Aidan after shunt surgery
- Question! (Baby Matilda)
- I'm new!
- Question on straight cath'g for new diagnoses
- pneumonia
- My brother is very sick. Help please
- trouble holdin up head
- Our Madison Lynn is here!
- Questions...
- New to the board
- Tethered Cord surgery
- Hi, I'm 21 weeks pregnant and diagnose with SB baby boy... I need help please
- My niece was just diagnosed with SBO and lipomas...
- Anyone use cloth diapers?
- Anyone's child have lesion beginning at L2?
- First full MRI
- What is Myelocystocele?
- Latest Nuerosureon visit, Questions?
- 20 weeks diagnosed today
- Baby Matilda's arrival
- Mobility
- opening at T6-T8
- Finally some answers for baby boy!
- Just found out our child has SB.
- Bowel Movements
- Shunt question
- Brain Development
- Stay at home mom jobs
- Need some help and advice
- New to all of this.. couple of questions?
- Leaking urine
- Just found out my daughter has sb.
- Is it urgent?? MRI tomorrow... or in 2 weeks?
- Anyone's baby had L5, S2, one clubbed foot and baby still walked?
- getting close to my c section date.
- SB in Dallas, TX and wondering where to go for 2nd opinion
- where to start
- Thank you!
- Timing
- luke update
- So Thankful for ALL OF YOU :)
- 2nd child with spina bifida
- Book Reccomendations?
- Prenatal Surgery L3
- Low tone
- I am Back Abel is now 10 weeks old!!
- HELP! i need ADVICE
- Léa Solenn has arrived- Questions
- 20 weeks scan showed SB for my 2nd bump
- my 4 month old diagnosed with Lipomyelomeningoceles
- Afos
- Uninformed Doctors
- SB Baby is Coming in 17 Days!
- Update on us
- Baby diagnosed with SB; family and drs. scaring me
- TOMORROW is the BIG day!!
- Newly diagnosed with sacral SB--tons of questions!
- Need advice
- New to Spina Bifida Connection
- Help with Chiari II
- 20 Weeks just diagnosed
- question about walker
- Baby Mason is Here and Home!
- 21 weeks, our little boy dignosed with SB
- 20 week scan and told baby has SB
- Waiting on my 2nd SB baby!
- MRI scan results
- Possible Adoption
- new and so many questions....
- club foot and nerve damage
- please help
- Scared mummy!
- c-section? normal birth? when do you deliver sb babies?
- MRI Scan Results
- To Catheterize or not?
- update
- leg tone
- Lipomyelocoele at L3 with low lying cord. Your advise pls.
- anybody close by?
- Please help
- Newly diagnoised, Looking for advice
- Just found out I am not a inutero surgery canidate.Please help! I am so worried!!
- New to this...
- MRI results- Need reassurance
- New here
- Miss Halle Grace is here/cloth diapers & natural butt care
- Fetal Surgery, Moms who have had it Qs
- Baby Shower ???
- Anxiety in my daughter
- Spina Bifida Questions
- Cecostomy: ACE
- worried nanna
- worried mummy
- Newly diagnosed, arrived at CHOPS
- Recently diagnosed with Spina Bifida Occulta
- What can change while still in womb?
- Questions
- Braylin's Update
- Myelo SB L1 down
- Just got the news
- My blood tests came back positive
- Has anyone had In Utero Surgery for SB Baby
- T10 legion. Is this really bad news??
- Don't want a C-section
- New walker
- Questions regarding possible tethered cord
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