View Full Version : Recently Diagnosed
- We just found out that our baby has spinal bifida
- Baby due in February
- i just found out my baby has sb
- Coping Skills
- c-section vs natural birth?
- breastfeeding??
- Another Newbie
- Hey everyone
- In need of support
- Formula's?????
- Recently diagnosed
- Chances for child walking who has SB?
- remembering
- Yeah, what a day! Just been told I was born with SB. :(
- Back from U of M doctors visit
- just diagnosed...want more info
- what are the chances?
- Baby arrived!
- Pregnancy - How is Spina Bifida Detected?
- NEW and LOST to SB
- From The Start
- here we go
- Baby boy due February 2009
- Diagnosed
- Birth and the hospital
- I have so many questions...
- Tethered cord surgery
- Myelomeningocele and hydrocephelus
- Student
- hello all
- Preterm labour
- Disqualified from MOMS fetal surgery study
- Lipomeningocele
- Delivery
- Merry Christmas
- prenatal ultrasounds
- Haveing Baby
- Chances of an SB baby having clubbed feet
- Sbo
- Hunter Wayne
- Chances of Newborn with SB requiring a blood tranfusion after surgeries
- Incidence of needing a trach
- Best Place to go
- Terminology questions
- Huge inspiration....
- The latest on my baby....
- Just curious...
- A bad day today......
- ultrasound tomorrow & thank you
- a good day today!
- New Mum in 11 weeks to SB little girl!
- Strength
- newly diagnosed
- high-dose folic acid - for whom?
- S1 - S4 or L1 - L5- Difference??
- recently diagnosed, new here
- Things just aren't looking good...
- Thank you and goodbye
- Recently Diagnosed
- 10 week baby with SB ( lots of questions)
- Meeting with Fetal Medicine Specialist
- 9 weeks now
- The surgeon confirmed it
- Update...
- Just wanted to check in ....
- new baby sbina bifida/hydrocephalus
- Baby cadon
- Recently diagnosed
- New to site- 15 month old
- Anyone familiar w/applying for medicaid in TX?
- Hello, I'm new!
- weaning ?
- kyle
- 20 weeks pregnant and just found out
- 22 weeks pregnant of a little girl w/ sb
- 21 weeks pregnant found out one baby girl may have open spinal bifida
- what is the worst thing about having spina bifida.?
- Thinking of adoption SB child, need more info
- C-section vs natural birth
- 21 weeks pregnant
- new baby catheter quetion
- been so long
- Need more info?
- You are all so very amazing!
- Just Diagnosed... Softball?
- Vogelpohl Update
- Twins are here!!!
- Shunt "hangover"?
- help! we're considering adopting a child with spina bifida
- 20 weeks, just found out
- question about SB and adoption
- Question on kids socks
- Double shunt revision!!!
- Son just diagnosed
- 28 weeks prego son has SB
- Daughters SB 1 year later anyone with questions?
- 21 weeks preg - just diagnosed
- had my scan
- Lots to Learn
- Hi everyone I'm new on here...
- Tense fontanelle = virus?
- How long until ttc again?
- New
- MOM's Study
- New Here
- Baby Zoe 1 year later
- Two babies with SB?
- Endoscopic Third Ventriculostomy.
- Speech delays & sensory issues w/ SB
- nothing new
- Cord Blood
- Hi There
- 36 weeks and freaking out
- ultrasound
- Yes, I'm sure I'm sure...
- Adopted a SB newborn
- 23 weeks pregnant, baby has SB
- Getting close! 3 1/2 weeks...
- Mackenzie's Update
- Lucy is here!!!
- just found out baby may have spina bifida
- 6 months old
- update and baby clothes!
- hydrotherapy!!
- Our Baby Boy
- was mild hydro now moderate to severe...
- Small Head on Ultrasound
- four surgeries in one hospital stay
- Questions for Neurologist
- Flu shots?
- 22 weeks pregnant - recent diagnosis
- ventricles enlarging
- Looking for parents in the UK
- Overwhelmed!
- Happy Abby
- Neuro appt
- ? about cathing for preschool
- Every cloud has a silver lining!!!
- Kaiser v/s other SB centers in the SF Bay area
- my daughter bea was diagnos with hyperreflexic bladder with no sphincter activity
- 4d scan, hydro and head size
- Help! I was just diagnosed at 20 weeks!
- Can or does myelo worsen during pregnancy?
- Baby Quen is home!!!
- aggiemom!! READ ME!
- parents vs doctors
- Our Nickolas coming tomorrow
- Baby Catherine is here
- Just found out
- Before our eyes....
- Seeking more info about meningocele SB
- 11 month old son with SB and easy gag reflex
- Not long to go...
- New member
- Thought I would share this
- Confuesed...
- Baby Caitlin is here!
- Small Head in Utero?
- Boston
- Sara Elisabeth has joined our family
- Help!!!! Need some advice
- just diagnosed at 20 weeks
- some news and some questions
- New Here
- Maria is here!!!
- recently diagnosed
- Found Out Last Week...
- SBO & Scoliosis...coincidence??
- Houston girl looking for support!
- My precious Lyla!
- Latex
- January 18
- Cathing
- He came early!
- Today was clinic
- just wind?
- My 13 year old son
- New to board
- 14 yr old dd diagn sbo tethered cord
- Just Diagnosed @ 20wks
- Lost
- anyone's child not have surgery on back right after birth?
- Don't know how this works
- devastated and confused
- Diagnosed SB and Hydrocephalus @ 19 weeks
- Urogenital anomaly and bladder exstrophy?
- confused parent
- lost all hope
- 3-d Ultrasound?
- Acupuncture for SB
- Hello
- questions to ask specialists?
- Just got back from ER and Ct showed all fine but still same issues!?
- Sac popping?
- Jordy's results after appointment yesterday
- Newly Diagnosed- our story
- uncertain
- Anyone out there with lesion at L3?..
- Cruising!!!!!!
- New here
- Another new mother expecting
- Pictures
- What are the main daily concerns when raising a child with SB?
- Spina bifida at s3 s4 region cyst is 1cm at 20wk
- Back from shands of gainsville
- Freaked out by other SB moms
- We found out 10 days ago
- Now they are diagnosing him with clubbed feet!
- Forgot to add...the Chiari Malformation
- New Mom, Need Some Advice Please
- New Information
- Lipomyelomeningceles - anyone?
- Symptoms
- Our first visit with the Urologist - what to expect?
- Your advice/opinions please
- The date has been set.
- Update on Bryce @ 31 weeks
- Found out on Monday
- questions about SB and shunts
- Having a baby...
- Need advice.....
- Found out yesterday, and could really use some information.
- dont judge me
- Just diagnosed S1 - S4, Chiari and clubbed feet
- Need advice..........
- New Questions
- Baby Angeliese is here!
- I'd like you to meet Sagan's neurosurgeon...
- Confused about diagnosis
- Financial Worries
- Feeling Guilty?
- new here with a baby with Myelomeningocele
- Question about Ultrasound
- What is the possibility of this?
- School-age kids
- Chance of NOT being SB?
- Having a tough day
- Had my MFM appointment today......
- C-Section?
- How often does this happen?
- Prenatal hydrocephalus
- Had my consult with neurosurgeon and cardiologist....
- Random Question
- Pediatrician in Michigan
- Ultrasound #3 results
- Protection Equipment
- Meningocele?
- My son has arrived and I have some questions!!
- Joshua's progress
- Sad news about Joshua
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