28 weeks prego son has SB

[LaceyRae]

Found out that my son's lesion is L2, and that he has mild hydro. Just wondering if anyone has a baby with the same lesion and can give me any perspective...Thank you and God bless!

[smoop]

Hello. When I was pregnant I was told my daughter's lesion was located at L1-L2. They told me to expect her to use a wheelchair full-time. I was also told that her feet were probably clubbed. Her lesion level is actually around L3-5 range and she did not have clubbed feet after all. She walks with long leg braces and crutches (she's just turning 4).

My point is that you should not get too hung up on the level right now. Doctors are often wrong. Not to mention that two SB children can have the same level and function quite differently.

Many of us empathize with how you're feeling right now as we've been there ourselves. Take one day at a time and have faith! Many blessings to you and your baby.

[janjanwhit]

I have a 20 week old baby boy with a L3 lesion and mild hydro. He has full movement to his ankles. Having a shunt fitted next week.
The pregnancy will be the hardest most painful thing you will ever endure and when you see your baby it will all be worth it. I felt like i was carrying a monster by the way people talked about my baby. He is beautiful and his life is meaningful. He is the light of my life and I lo0ve him to pieces. He is doing so much better than we were told. The doctors will only tell you about the worst case senario.
Just enjoy every day and take what comes. Nobody knows what your baby will be capable of except god, and god loves your baby more than you ever could!

[Bigwilli]

Our daughter was born almost 1 year ago and is doing amazing. She has had no shut revisions and met all her milestones. She is not walking yet but we expect some delay. The important thing is she is smart, healthy and makes us laugh! Good luck I'll be praying for you!

[jveprek]

Madi is an L2 level with hydro. She has one mildly clubbed foot that is currently casted. We do not cath her and she does have a shunt. She gets physical therapy and is doing so well! She is the most amazing, beautiful, and sweet little 8 month old you will ever meet! It's been a journey but every day I thank God for her. She is so worth it! You can read our blog if it will help you understand what life is like www.missmadisjourney.blogspot.com. Here is a poem on there I wrote for her:

When at first we heard the news
We were a bit blown away
It was very hard to hear
You may not walk one day

We cried for you
But not from a lack of love
We mourned what we thought you could not have
Though we knew you were a gift from above

We were thankful God blessed us with you
And knew it would all be okay
We stopped our crying and smiled
Thanking God for blessing us this way

You are a very special girl
There is no doubt in our minds
You will accomplish great things
Who you are just shines

You are beautiful and smart
Compassionate, determined, and sweet
Even though you are still so small
We know you can accomplish any feat

We are honored to be your parents
And love you more than you know
We promise to give you the best in life
We look forward to watching you grow

Thank you for blessing us so abundantly
By just simply being who you are
You are absolutely perfect to us
Our bright and shining star

We love you!

[LaceyRae]

That is such a sweet poem :) We felt, and feel the same way...Thank you and God bless