How did you find Spina Bidifa Connection?

[Holly]

I know the owner :p

How did you all find us!!

[eng188]

My mother gave this link to me. It's proven by far to be the best biff site I know, but at times I do wish it were a tad busier.

[Holly]

I do wish it were a tad busier. We are trying :) We have a lot of members and it is "busy" but no one posts much :( And welcome!!

[Dodger67]

Google search. Even though I wasn't looking specifically for a forum.

[wheeliedude07]

Google search. Even though I wasn't looking specifically for a forum.
I came across this board kinda like Dodger did. I was looking for something entirely different when this popped up! I actually was looking for message board forum software to give a site I run a redesign. What are the chances of THAT happening huh? LOL!

Have a great Saturday, friends!

Wheeliedude07, aka, Frankie

[lolathechecker]

i wanted to find parents of other kids with sb, so i googled "spina bifida forum" and this was the first to pop up! i found another one, too, but the site wasnt set up as well as this one! good job guys!

[Holly]

this was the first to pop up! Well, we are happy to hear that! lol..... Happy you like it here!

[Spokie]

I gave up finding a decent site loooooong ago. Then just the other day I was chatting to a colleague, complaining about the struggle to get decent info on SB and the lack of associations in South Africa, when she urged me to give it another try - there must be a good chat group or forum somewhere out there, some parent would have taken the lead by now and started something - and guess what I found?!!

[StrictNon-Conformist]

Of all things, I got the link from another poster (I presume a member of this forum) while answering a question on answer.yahoo.com where I replied to someone asking a question about spina bifida occulta where I suggested they look up tethered cord syndrome to get a better understanding of what they might have to deal with.

I don't know how severe it was in the case of the person asking the question because they didn't specify anything beyond back pain, which might/might not be meaningful, but I figured leading someone to useful information can't cause harm, and may even put them more mentally at ease. It's entirely possible that when they were told by their doctor, the doctor didn't state "But don't worry about it, a lot of people have it to this degree and it doesn't cause an issue." which seems to be the nature of doctors: they tell you something, fully aware of what it may mean in practice, but somehow they're thinking that but not explaining it to their patients, which then causes more stress than needed! Either that, or it seems some don't seem to explain enough detail when they really need to, to keep people from causing themselves worse situations... Makes me think that perhaps typical doctors are in collusion with psychologists/psychiatrists and have a quota with how many patients they drive into psychiatric conditions from worry and stress from not knowing ;)

[Barb]

That makes me happy!
I gave up finding a decent site loooooong ago. Then just the other day I was chatting to a colleague, complaining about the struggle to get decent info on SB and the lack of associations in South Africa, when she urged me to give it another try - there must be a good chat group or forum somewhere out there, some parent would have taken the lead by now and started something - and guess what I found?!!

[mommy2cnj]

I happened to be googling for information pertaining to schooling children w/ spina bifida and here we be! I've also enjoyed the other boards as well, Barb! Thanks to you, Holly, and all of you who post!! :)

[angel]

I used google

[swanson]

I know the owner :p

How did you all find us!!

through google my wife found it

[lisamarie6801]

I believe I was "Googling" SB, wanting to study on Shyann's upcoming ACE surgery! Whatta Goldmine!!!:D