hi

[billi-jo]

hi my name is billi-jo i have a 7 year old daughter with spina bifida her name is charlize until now her/our only troubles have been utis (constantly) her doctors have decided that she now needs a m.a.c.e. and a mitrofanoff i have read alot about it but am still freaking out, i dont have anyone else to ask because no one i know has a clue about it. Iwas just wondering if anyone else has been through this with there child, charlize still walks and has only ever had minor surgerys.

[Dodger67]

Hello Billi-Jo and Charlize!
Welcome! :happy065:

There are quite a few folks here who have the Mitrofanoff and/or Mace.

I have only the Mitrofanoff.

I can honestly say its one of the absolute best surgeries I have ever had.
It solved my incontinence permanently. My only regret is that I only got it in my early 30's (I'm 42 now).
It is quite a strenous operation for an adult to go through, from, what others have said it is a lot easier for kids.

For Charlize to grow up into her teens and adulthood without all the issues that come with incontinence would be a huge advantage. Not only for her health but her socialisation would be so much easier.
For me getting the Mitrofanoff done changed me from a shy reclusive introvert into a happy outgoing socially functional adult.
I could get involved in a serious relationship for the first time.
I'm currently studying for a teaching degree and will be a high school teacher - something I wouldn't even have considered possible before I had the surgery.

I have absolutely no reservations in saying - Go for it!

[billi-jo]

Hey roger thanks heaps for thr reply, i am definetly going ahead with the surgerys for my little girl we r all booked in for the 13th may, i guess im just freaking out, charlize seems extremely happy to have it, hopefully all goes well take care and thanks again billi-jo x

[Emm]

I know your going to find lots of help and advice on this forum. It's made such a difference to me knowing people who have the same sort of problems. You can just come here and have a good old moan - we will all listen to you and try to show our support. And then you can tell us the good bits and we can all have a good laugh together!
Chin up and keep posting - love and best wishes to you and yours.:happy065: