i love this site but....

[miss piggy]

i sometimes wish there were more people that came on here so as threads would be answered quickly or that there would be a fresh variety of topics ....really this shows how lazy i am and how i would love to chat more all day on here rather than do housework!! hee hee!!!:clap2::D

[XoBLoNDiE85]

haha i would live on here myself but i pry myself away lol

[Dodger67]

I already have a closer relationship with many regulars here than I have with people living in my street and even some of my relatives.

I login here at least 4 or 5 times a day - first thing in the morning then a couple of times through the day and again just before switching off the light.
In case you're wondering how I manage it, I use my cellphone during the early morning session while on the toilet. My pc during the day and cellphone again after I get into bed.

[angel]

I also check this site several times a day. I have a group of "regular" sites i check every couple of hours. Facebook, this and various news sites (I am a news junkie). I love it on here and like dodger said I am closer to people on here than I am most people on my own street. It is a great community and usually when someone posts something you don't have to wait more than an hour for at least one response.

Angel

[Gymp]

"I use my cellphone during the early morning session while on the toilet."Tooo much info Roger...LOL...

I'm here twice daily,once in the morning with my cup of java then once after my after supper nap.
I occasionally will poke in when I have some work to do on the computer,that could be at any time.

I find this place comfy,thanks Barb!

Gymp

[Dodger67]

I'm obviously addicted - need my first SBC fix of the day even before coffee!

[LysetteOlmeda]

LOL! Dodgers comment had me laughing so hard! But I do which we could chat one here too! I hate that my cellphone only lets me view the site, I cant actually log in. So I have to wait till I go to my parents. Thats why I asked about facebook Im on that all day :) Message me if you wanna add me, Id love it.

[sean]

LOL Roger, multi tasking before coffee....very athletic.
I often wake up thinking of SBC and you guys. Still got dial up so it's, as I pass by, switch on pc, loo, feed the cats let rabbit out, kettle on, ?loo, log in, make coffee, dial up, wash dishes empty bin, ?loo, log in to SBC. It's all about pace, lol

[NerdaliciouS]

Yep! I'm here pretty often too! Whether I'm logged in or not. :p

Once when I wake up, then again a few times throughout the day. I like you guys too much!!:clap2:

[LillyPie]

I may not post everyday but I log on at least once a day, mostly 2-3 times a day. I have said it before and I will say it again...."I Love This Site" and of course the people who join it as well.

[LisaJoy]

LOL Roger, multi tasking before coffee....very athletic.
I often wake up thinking of SBC and you guys. Still got dial up so it's, as I pass by, switch on pc, loo, feed the cats let rabbit out, kettle on, ?loo, log in, make coffee, dial up, wash dishes empty bin, ?loo, log in to SBC. It's all about pace, lol

Sean, you always make me laugh!

I'm on here once or twice a day, most days. I try not to skip a day because I get so far behind reading posts!

I feel so cosmopolitan, having friends all over the world. :)

[Makennasmom]

I've only been on the site for a couple of months, but I'm addicted too. I love to see whats going on with everyone. Someone always makes me laugh, I love it. I don't always have time to reply but I do read new posts as often as I can. (in the evenings I have a 12 and a 15 year old to share computer time with, oh yah and a husband)

[Jess&Madi]

Only just found this site & already I'm addicted. It's the nicest feeling in the world knowing there's others out there in the same situation. Nicest feeling next to holding my precious baby girl that is:)

[Dodger67]

"SBC New posts" is the first of my homepage tabs.
The other two are my university homepage (I'm doing a bachelors of education by correspondence) and the SA Radio League forum page (my hobby is amateur "ham" radio).

[angel]

Unless the sky is falling (and some days it does) I don't miss reading the new posts. If i miss a day it feels like i am totally out of the loop! I don't always comment on things espically in the hydro section because I know absolutly NOTHING about it. I figure it is best for those who know what they are talking about to help out there. I always get excited when i see new people join and read their stories. To me in a wierd kind of way it seems like a validation of some sort. I have delt with all these things and come out on the other side but instead of just dealing with it and getting through it as a personal accomplishment now maybe those experiences can help someone else out. Maybe i am nuts but makes me feel like maybe there is a bigger reason other than just the luck of the draw that I was born with SB. If I can help someone else out then it doesn't feel like a burdon more of a blessing. Wierd i know but how i feel.

Angel

[sean]

Angel, I feel it too, "bigger reason than just luck of the draw that I was born with SB."
I worry that I have some grand delusion of myself, and it's taken several decades to consider it, and realise the blessing of having SB.
I went through so much, alone, and here I am (does feel like the other side) still standing. Living the good life simply, good heart, active mind, never harmed anyone.
Just getting through to where I am now, living with 'my' bladder and bowel, I take great pride in myself for this personal achievement. I feel heroic in myself.....sorry but I do, I was a master of getting away with it, living fully, leaving my incontinence behind.
(pardon the pun)
Even though 'I' always new I was working hard and struggling for social inclusion, it had no voice, it felt expected that I be silent.
Not until I realised I am not alone and my struggles were real (validated) that I realised my worth. My experience has been worth it, to keep going is worth it.
Being able to share with people who truely, genuinely understand living with SB,is not just warm and fuzzy it's empowering.
I wonder if I'm just wierd, but feel compelled (like a spina bifida radar) to support any way I can. I've gained so much from people sharing thier experiences does feel like validation of my own. If I can direct folk away from the bad of my experience, into the good the future holds, no need for sugar, keep it real, I'll be happy.
You know, I'm not out to change the world, maybe just a little in my little world, if it's not working, fix it....
At last I have a voice and I'm going to use it!!!!

thanks Angel

[Emm]

I totally understand where you are coming from ,Sean. I felt for years that I was just this odd person in the family and I didn't really have a voice. Now I understand more about sb and can empathise with what people are saying on here to a large degree, - must admit I don't have a clue about what L3/L4 etc, mean, plus other medical stuff.
Love to hear how you guys are doing especially mums with sb babies.
My mum new I was very poorly and I was left in hospital for several weeks after I was born and I wasn't expected to live, during which time my father went out and bought a coffin, which my mother never, ever forgave him for. However, when eventually she got me home , nobody had actual told her of the operation or anything that had taken place. So you can imagine the shock when the first time she went to undress me she was met by this horrific wound on my back. Can't imagine what a shock that must have been!
Ah! The good old days!
Love to come on here as much as I can.

:happy065:

[Barb]

I am subscribed to all the threads via my phone so I read even though it looks like I am not always here.

I go through stages with SB though and sometimes I just don't want to talk about it. Does anyone else ever just have to not think or talk about sb sometimes?

[bcain]

I sometimes don't want think about it too, and it's good. I think it's in the back of my mind almost always, but sometimes I purposely ignore it there.

[sean]

Definately! I think it's so important. I feel a bit consumed by SB these days, but still manage to switch off and tend to all I need to. Smell the coffee/roses.
Only reminded when something happens to remind me.
So much so that I've found myself so engrosed in building or gardening that I don't realise my bag has come off, under the dirt and sweat I'm wet to my toes, quite possibly pooped a little too. This does not happen often, and I obviously subconsciously know I'm safe (alone) to let it happen. It doesn't register until I'm near finished what I'm doing, by which time, couldn't care less....look what I've achieved.....if nothing else a free physical work out. Sorry TMI!.
I mentioned a quote recently, ?who,
"You don't live in your homes, you live in your careers"
I'm thinking life with SB is mostly about survival, it's a job, sorry,,,still a gift but seriously hard work over a life time, labourious!.
'Living' is everything beyond my surviving nurtureing centre/home caring for me and my SB.
Big beautiful world out there. Hope I'm making the most of it.

ps Bugger! who am I trying to kid, there is no switch off button, actively ignore it as often as possible. lol

[NerdaliciouS]

Yep. Sometimes it makes me feel 100% freak and I want to ignore it. It's always somewhere in my mind, but if I'm in a lot of pain, I have to move around a lot, or I'm trying to plan something... Or I see myself in a mirror, I guess. I dunno, I try to ignore it. PROOOOOOBABLY in hopes it'll go away, but who am I kidding? Haha. Stupid SB. Oh well, there are worse things. Believe me... Much... Worse... But still. Bleh. -_-

[angel]

I know exactly what you mean. I spent most of my life never breathing a word about it. I never talked about it until i was at least in my mid 20's unless someone asked me a direct question. I think most people don't realize how small a roll it plays in my life. The things I have to do to tend to the issues it presents is almost robotic. I have done it so long it is just part of the routine. Other than the work I do at shriners, and coming here it isn't a subject i discuss or really think about that much.

Angel

[Gymp]

I usually never think of the SB I have at all.I just muddle through my days thinking about what needs to be done and go about my business.If my bowels or back act up,my bag springs a leak,well it's just that,I don't relate it to the SB,it's just a part of my life that I've gotta deal with.When I have a bladder or bowel accident my mind goes into an auto pilot mode to best remedy the bad situation I'm in and I get to it,get er done,then move on to the next predicament.When I'm here at the forum I'm reminded I have SB but other than that I'm just me.

I tend to think lots about getting old though,the body slowing down process that's happening,it literally scares me.

Gymp