Rufus
04-01-2008, 08:05 PM
My name is Rufus, and though I am not afflicted by this horrible disorder that has affected so many families emotionally, spiritually, as well as physically, I am dating a woman who does, and it breaks my heart every time she goes to the doctors and they give her shots in her back so that the pain will dissipate enough just so she can get around comfortably.
When I read and they say there is no cure, it hurts me, and I can't help but drive myself crazy, when technology in medical science has progressed so much, but yet there seems to be the proverbial dead end when it comes to this disorder.
My babes was never supposed to have ever walked, but by God's grace she somehow found a way to do so. She was never supposed to have ever had children, but, again, by the grace of God, she had two wonderful sons. And now in her 30's, the pain is becoming too much and the shots and procedures they have done so far, haven't made her any better, though I can't say they have made her any worse.
Her left leg has been going numb on her anymore, and from time to time it will give out on her. It breaks my heart, and hurts me so much, to know after all she has over come in life, that now the possibility is there, that she may not be able to walk for much longer.
I have researched, and I am just at wits end. The only thing I can keep going back to is stem cells, though my knowledge on that is limited as well. I do not know if stem cells could help repair or rebuild or build on to what is partially developed or is non-existant in her spine.
I'm dying for an answer, or some glimmer of hope. The doctors want her to do some form of therapy called radiofrequency neurolosis, or something to that effect, and to me I do not know if having to have this done every 2-4 weeks for the remainder of her life, or until she can no longer walk, is really worth the pain and suffering.
My babes tells me all the time, she doesn't want there to be no excuse or no one thing not done or tried, because she feels that if she does lose the ability to walk, she doesn't know what would be worse, never walking again or knowing that she didn't try everything available that could have kept her walking longer.
Any help, information, suggestion would be greatly appreciated.
=Rufus=
When I read and they say there is no cure, it hurts me, and I can't help but drive myself crazy, when technology in medical science has progressed so much, but yet there seems to be the proverbial dead end when it comes to this disorder.
My babes was never supposed to have ever walked, but by God's grace she somehow found a way to do so. She was never supposed to have ever had children, but, again, by the grace of God, she had two wonderful sons. And now in her 30's, the pain is becoming too much and the shots and procedures they have done so far, haven't made her any better, though I can't say they have made her any worse.
Her left leg has been going numb on her anymore, and from time to time it will give out on her. It breaks my heart, and hurts me so much, to know after all she has over come in life, that now the possibility is there, that she may not be able to walk for much longer.
I have researched, and I am just at wits end. The only thing I can keep going back to is stem cells, though my knowledge on that is limited as well. I do not know if stem cells could help repair or rebuild or build on to what is partially developed or is non-existant in her spine.
I'm dying for an answer, or some glimmer of hope. The doctors want her to do some form of therapy called radiofrequency neurolosis, or something to that effect, and to me I do not know if having to have this done every 2-4 weeks for the remainder of her life, or until she can no longer walk, is really worth the pain and suffering.
My babes tells me all the time, she doesn't want there to be no excuse or no one thing not done or tried, because she feels that if she does lose the ability to walk, she doesn't know what would be worse, never walking again or knowing that she didn't try everything available that could have kept her walking longer.
Any help, information, suggestion would be greatly appreciated.
=Rufus=