A doctor just fell in my lap yesterday

[angel]

Yesterday i took my son to shriners for his ortho appointment. Now they have had trouble keeping doctors as they are beeing wooed by much bigger hospitals. We have had 2 in the past year alone. Now they have a doctor that comes from all the way on the other side of the state to see the patients. Yesterday was the first time we met him. I am happy to say my son got a good report. His spine is straight and his strength has significantly increased. He has been riding his bike a lot this past 2 weeks.
I expected to go home as usual happy as can be about the good report. Then he said you get up and walk for me. He was talking to me. I haven't had to do this since i was 18 lol. So i got up and walked then he started checking how much i could straighten out at the hips and knees. He asked me how much i had lost since i stopped seeing doctors about my SB. Then he looked at the myleo coordnator and said i want these x rays on her send her to this place and then i want the x rays sent to me. I WAS FLOORED!!!! I told him i hadn't seen a doctor since i became an adult because there was almost no good care for adults with sb or it is very hard to find. He said that is because there is no book on how to care for you as adults. He said that is the book he wants to write before he dies. I told him that i would love to read that one as i am sure we all would. I just had to tell you guys about it i couldn't believe the luck i had to have a doctor that wants to learn fall in my lap that way. Needless to say this gives my husband peace of mind as he didn't understand why there was no one for me to see that knew what they were doing.

Angel

[technovicki]

wow...that's a blessing...a doctor interested in an adult with SB. and someone needs to write / research / track / develop treatment plans, etc. for adults.

[StrictNon-Conformist]

Whatever his motives may be, hey, at least he's motivated! These are the motivational reasons I could see:

1. He's a natural healer, caring person that just loves to help people, and hopefully that was his prime motivator for his profession. It's crazy to me, but there's a lot of people that go into a job/career/profession just because they see a big paycheck.

2. Perhaps he's a glory hound, and wants something unique he can call his for pioneering. Ok, hey, at least he's not wasting it on silly research!

3. Perhaps, just perhaps, he's of a business mind, and he's largely into the money, and as a matter of professional pride, is using all his training to provide for a market that for some weird reason, seems to be ignored mostly, and he's decided to make it his niche. Well, the best way to be successful is to serve a market nobody else serves, that has a customer base.

4. Maybe a combination of all of the above.

Whatever the motivation, hey, the world needs more practical doctors/entrepreneurs like him, don't lose track of this guy :)

Now, see if you can get him to provide his services in return for you referring others to him, as even co-pays aren't perfectly free ;)

[angel]

This doctor seems truly intrested in what he is doing. He said he has been following his patients from the time they were born and now some of them are in their 40's. I think he may have a true intrest in trying to figure out why no one knows what to do with us when we get older. Whatever his motivation i am happy someone is trying to figure it out. I think i just got lucky i mean if you think about it most people who have SB don't have a parent that has it as well. So we kind of fell into each other's laps. Mine is more severe than my son's his is occulta mine is myleo. He was checking out my son and looked him over tested his strength everywhere and just couldn't believe that he was a +5 (whatever that means) everywhere he couldn't find a really weak spot on him. This guy wasn't like a lot of the other doctors that we have seen that look at an x ray say he's fine and run in and out in 3 minutes. I was impressed with the way he handled my son he just blew me away with the rest of it.

Angel

[Dodger67]

Don't just read his book - help him write it!
It would be really great if you could get him to join this forum - then we "old timers" could all help to get the book written. I for one would be happy to contribute whatever I can.

[angel]

You know it is funny you said that because when i told him i wanted to read that when he finished he said i would like you to write a chapter in it on how you maintained yourself with NO help all these years. Next time i see it i will slip him the address to this forum it can't hurt to try.

I told him i am no writer but lucky for me my husband is and he could do it for me (if he has time) or could at least edit it.

I am sure we all would have plenty to contribute!!!!

Angel

[KMkaggerud]

Angel,

I think it would be great if both you and your husband wrote a chapter for the book, one chapter about your life living with SB and your husband writing one on being a spouse of a person with SB and having a child with SB.

I also agree that you should try and get the doctor to be part of the forum and see if other people on the forum could help him write the book.

Kristin

PS. If you don't mind me asking where do you and your family live? I am in CA and there is a great clinic that I have been going to for the last few years for adults with SB. The clinic in the San Francisco Bay Area.