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I have a 11 month old daughter (Addelynn) with lower lumbar myelomeningocele and a shunt. We were surprised by it. We had all the testing and two ultrsounds, but no one saw it. She is wonderful and doing fine.
Lifeisgood
08-13-2010, 12:40 AM
Welcome! Glad to have you on board!!! :)
n3rdchik
08-13-2010, 11:43 AM
Welcome!! Sagan was diagnosed at birth too. Love your daughter's name!
Papillon
08-13-2010, 02:11 PM
Welcome!!!
Dodger67
08-13-2010, 02:13 PM
Welcome! :happy065:
Please feel free to jump in on any topic or to start new ones.
LisaJoy
08-13-2010, 04:04 PM
Welcome! Glad you found us.
That must have been a hard thing to discover at birth. :( Glad you're here, welcome!
hope&faith
08-18-2010, 01:19 AM
another welcome here. I second the idea of not learning about the diagnoisis until birth. Looking forward to getting to know you
:) Holli
valerie
08-18-2010, 09:57 AM
Welcome.... i am another one!!! We didnt know about Cians SB until Birth also.... its tough going.....this site is a great help.....
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