Sugar62108
10-06-2007, 07:11 AM
Hi everyone! My name is Emily. I'm a 25 year old with SB L5 myelomeningocele. I've also had Hydrocephalus since I was about a week old. I walk independently, though by the end of the day, I'm leaning on someone's arm! I catheterize, wear "protective underwear" - I hate to call them diapers, I am not a baby!
I'm working as a Respite Care Provider through a wonderful company called Bay Respite Care located in Vallejo, CA. I travel all over my county, taking care of developmentally challenged children in their own homes.
I am getting married In several months, on June 21 to the most wonderful man on the face of the planet - hands down! His name is Terence, we have been together for a little over 2 years, and I could not be any happier! He also has Hydrocephalus, and he's got 2 shunts, whereas I only have one. But even though he was a preemie and not expected to survive, he is now 28 and very much independent. He's been at the same job for 7.5 years, helps his mom, who's single, with bills and whatever, and is the most kind, generous, supportive, funloving, loveable and loving person I know. And he loves me just as I am! I am so stinking spoiled and happy!
We met at work in January 2005. We worked at Walmart - he was a sales associate, Iwas on the remodel crew. Yes! I helped dismantled and rebuild display, move merchandise, the whole 9 yards. Not work I could've seen myself doing or that I ever want to do again, but I did meet Terence there, so it wasn't all bad! He is a real blessing in my life, the kind of person only God could've paired me with. We are the proverbial "perfect match!"
I hate to use the word "disabled," because it means "not able." We are able, it's just that we have to adapt and do some things differently! ;) It's all about figuring out how you can - because YOU CAN!
Love and Blessings to you all!
Emily
I'm working as a Respite Care Provider through a wonderful company called Bay Respite Care located in Vallejo, CA. I travel all over my county, taking care of developmentally challenged children in their own homes.
I am getting married In several months, on June 21 to the most wonderful man on the face of the planet - hands down! His name is Terence, we have been together for a little over 2 years, and I could not be any happier! He also has Hydrocephalus, and he's got 2 shunts, whereas I only have one. But even though he was a preemie and not expected to survive, he is now 28 and very much independent. He's been at the same job for 7.5 years, helps his mom, who's single, with bills and whatever, and is the most kind, generous, supportive, funloving, loveable and loving person I know. And he loves me just as I am! I am so stinking spoiled and happy!
We met at work in January 2005. We worked at Walmart - he was a sales associate, Iwas on the remodel crew. Yes! I helped dismantled and rebuild display, move merchandise, the whole 9 yards. Not work I could've seen myself doing or that I ever want to do again, but I did meet Terence there, so it wasn't all bad! He is a real blessing in my life, the kind of person only God could've paired me with. We are the proverbial "perfect match!"
I hate to use the word "disabled," because it means "not able." We are able, it's just that we have to adapt and do some things differently! ;) It's all about figuring out how you can - because YOU CAN!
Love and Blessings to you all!
Emily