hello!

[stompinsarah]

im sarah from uk got 7 year ols bethany 5 year old bradley and 3 year old bailey.
bailey has spina bifida Myelomeningocele...was diagnosed with scan at 20 weeks pregnant.

bailey wears night time splits and insoles during the day, needs catherterising twice a day and also needs physiotherapy

:signs116:

[Dodger67]

Hi Sarah
Welcome to the forum. Please feel free to jump right in.
At what level is Bailey's lesion?
Does s/he have hydrocephalus?

[Barb]

Hi! Welcome! As Dodger said, jump right in and make yourself at home :happy065:

[stompinsarah]

hes liasion is at the base of his spine and he doesnt have hydrocephleus...he was pretty lucky really......

however its takin its toll now tho as im beginin to realise just how hard things are.... i.e walking and toileting.....

[Barb]

Welcome. This area may be the most help to you:
http://spinabifidaconnection.com/forumdisplay.php?f=14