Jen
01-14-2011, 09:25 PM
Well Luke is one month old. He was released from the hospital on Saturday and has been doing so great. When I first found out about the spina bifida I was 17 weeks pregnant. I was so scared and found myself in a corner. The doctors kept telling me to terminate and they painted and very cruel picture for me. For all you pregnant ladys I know you hear the same thing, "just wait and see." I cant tell you how much that was getting to me! I really just wanted answers, I wanted some one to tell me what was to come. But in reality people can't, no one can. Every baby is different. Just know that everything will be okay. I am a close follower of God but I never really have had a testimony of my own. So many people were praying for us, from friends and family to strangers. God works his miracles all you need is to have faith and leave it in his hands. I never understood how to leave it in his hands until now. Luke is here and is some great fighter. He has recovered through all his four surgerys marvously and is very active. He started urinating on his own and as of now does not have to be cathed. His bowels are coming out on their own. He moves both legs, his right leg does have more movement than the left, and he pushes back when you bend them at the knees, his left leg is not so strong, he has movement in it but it seems more like reflexes but hopefully with therapy it will improve. His shunt has been working really well and we have not had any problems with it so far. Luke is very alert and responds well to sound and follows well with his eyes. His back stitches will be removed on Tuesday and seems to be healing well. The doctors said he is a fast healer. Which is awesome news. He has been a good trooper from the begining. He is our little angel and no matter what the doctors tell you to expect just wait! Even after birth and his first surgery the doctor came in my room and said he will not even move his legs or have reflexes or be mobile what so ever. The next day his toes wiggled, then the following day his feet moved, after that day his leg bent, and by the time you knew it he was kicking when you wouldnt give him is bottle and wiggled his toes when you tickled his feet. Taking a look at Luke people dont even believe me when I tell them he has SB. So I know He is just 1 month please take my words to heart and try to trust in God! Your baby was made for you because He made you for him/her. He will be with you all the way and make you strong! It seems like I went through more pain than Luke in a way because I was just so worried all the time but I know my baby can handle what comes his way and what life will throw at him. He is a fast healer and I believe in the future ahead of him he will become one. Take care MOMS and dont ever give up just pray! All of you and your children are in my prayers always!!!:happy065: