Hi! New Here!

[Mom2Donna]

Hello Everyone!
My name is Karen. I, myself, do not have Spina Bifida. My 12 yearold daughter does.
I just found this site and am really excited about meeting everyone! I hope to find a lot of useful things....we are going through some rough patches (considering we are in our teen years now...uggh! LOL).

[ollieholmes]

Welcome to the website. Im sure others here may be able to relate to the problems you are having. Dont be afraid to ask though.

[Dodger67]

Hi Karen
Welcome to the forum. :happy065:
I don't want to "bite the newbie" but I have an objection to what you have written.

---------Controversial topic below---------

Your daughter (who you forgot to name) is entering her teens - not you.
One of the most serious problems teens and young adults with SB (and other disabilities) face, is "excessive" parenting.

One of the regulars here has told me about adults with SB attending major conferences and other public events, who are incapable of ordering a drink without their mother's help/interference.

Please understand I am not attacking you personally, I am merely (ab)using your post to raise a very important issue. If anyone wishes to take up this topic further please do so in the "Adults" section.

Please invite your daughter to join the forum so that she may speak for herself.
The same invitation goes to all members here who's child with SB is old enough to use a computer and write a sentence.
Please let your child live their own life.

[angel]

Hi,

Welcome to the group!!! I can understand about the teen years i have an 11 (almost 12) year old boy with SBO. I am 31 and i have myleo. I remember what it was like when i was your daughter's age. It was akward to say the least and being the only disabled person (in the whole world so it seemed to me) made it a little more akward. If i can offer you any support and or advice just let me know :)

Thanks for the comment dodger we all adore you and know you only mean well!!! ;)

As for my son although he is old enough to use a computer he is so shy about his issues that he will barely discuss them with me. He doesn't have very many mostly the neurogenic bladder and a couple of surgeries on his back. I can relate to how he feels although i am trying to bring him out of his shell. But i will let him sign up immediatly when he feels he has questions or something he would like to say.

angel

[Mom2Donna]

Forgive me, her name is Donna Kaye. I have to say that I do agree with some of the things you said...and have to admit I do catch myself "over-parenting" Hard not to when you love someone so much.

[Dodger67]

Of course you're forgiven.
Am I forgiven for biting the newbie?

Just a thought: Maybe we should have a section here exclusively for the youngsters - no mothers allowed?
A few of the adults with SB (such as me) could moderate it. A place where the kids can safely blow off steam and discuss issues without mommy butting in.

[Barb]

That is a pretty good idea. I am a huge over parenter. Of course, C is just turning 10 and is also autistic but I try, I swear, I really really do to back off. I know the day will come when I can't (or shouldn't) be there for him so while it is painful to watch him struggle with stuff, i know it is necessary

[Mom2Donna]

Of course you're forgiven.
Am I forgiven for biting the newbie?

Just a thought: Maybe we should have a section here exclusively for the youngsters - no mothers allowed?
A few of the adults with SB (such as me) could moderate it. A place where the kids can safely blow off steam and discuss issues without mommy butting in.

Of course you are forgiven for biting! LOL

I think a "Youngsters Section" would be great! ...But the not butting in part may be difficult ;)

[Dodger67]

Not difficult at all - you will simply not be allowed in.
Its quite easy to configure different sections of the forum to allow or exclude various usergroups. If you are in an excluded group, you won't even know the section exists. So unless you steal your child's password or are a brilliant hacker, you cannot get in.