tiffy799
08-25-2008, 01:32 AM
Hello!
I am new here but thought I could get some advice from time to time from others who have been through this. My little boy, Ethan, is 15 months old. He was born with SB (lipomyelomeningocele, tcs, hypotonia, oral sensory issues) He had his first detethering surgery at 2 months of age and has done well. He is taking steps now with no orthotics. He started the step taking about a month ago and is still not able to walk for long distances (long, meaning farther than across the living room and back before going to a kneeling position). His right leg seems to turn outward the more tired he gets and his feet are also pronating. We are going the SB clinic, PT, OT, ect...but would like to know how long the process took for others who have kids beginning to walk to full walking most of the time. Also, what is the range for the first de-tethering surgery after the initial repair is done for most children. What are the first signs of a symptomatic retetether for most children. Ethan has had urodynamics testing done and has no problems with bowels or bladder. Thanks for you time :signs116:
Tiffany
www.caringbridge.org/visit/ethanspage
I am new here but thought I could get some advice from time to time from others who have been through this. My little boy, Ethan, is 15 months old. He was born with SB (lipomyelomeningocele, tcs, hypotonia, oral sensory issues) He had his first detethering surgery at 2 months of age and has done well. He is taking steps now with no orthotics. He started the step taking about a month ago and is still not able to walk for long distances (long, meaning farther than across the living room and back before going to a kneeling position). His right leg seems to turn outward the more tired he gets and his feet are also pronating. We are going the SB clinic, PT, OT, ect...but would like to know how long the process took for others who have kids beginning to walk to full walking most of the time. Also, what is the range for the first de-tethering surgery after the initial repair is done for most children. What are the first signs of a symptomatic retetether for most children. Ethan has had urodynamics testing done and has no problems with bowels or bladder. Thanks for you time :signs116:
Tiffany
www.caringbridge.org/visit/ethanspage