Looking for other moms

[kkkmom]

Hey I am new to the group. I live in Louisiana. I have a 12 year old with SB. She is a T-8/T12 level. To see her though you would never belief she is that high. I am wanting to find out what other moms have done when their daughter have started their monthly cycle? My daughter hasn't started yet but I think it may be real soon.
Any suggestions would be appricieated. She is a chair user, Cath through a matroffanoff, had has an ace. She likes to depend on others if they will let. She can do a lot for her self but preferes someone else to do it. Any suggestions?
Christy:sign0009:

[cutie patooties mom]

Christy!!!!!!
Gabi started last month after camp! That's why I went looking for this site. I have the same questions as you. When she had it, we went through a whole box of wet wipes. I don't know what to do with the cleanliness aspect of it. We tried pads and it wasn't nice!:6775: So we ended up with her wearing goodnites to school. Its all ok when she's at home, but at school she's in the bathroom all by herself and she cant change her own goodnights. I dont want her to have something on herself and be embarrassed. What to do????
Bronwyn
PS. I hope yall are keeping safe with Gustav coming. :kleenex:

[Barb]

Welcome and Gustav is exactly what I was thinking.:11a: Thoughts with you!

[Dodger67]

Whats all this about? Old friends reunion or can anyone join in? LOL!
I have a comment about her dependency/laziness: You need to stop doing things that she should do for herself. At her age her habits/atittudes/character are becoming harder to change. You may have to apply "tough love" principles. The going will get tough at times but not doing it will result in a dependent adult - and that would be a huge tragedy.
Getting back to the original question: She has a Mitrofanoff, so urinary continence is not a problem. Therefor why could she not use pads or tampons just like any woman? It may be a good idea to consult a gynaecologist.

[Barb]

Hey Dodger, Gustav is a major hurricane making landfall in her area today.

[Dodger67]

Yes I do know "who" Gustav is - Saw the mayor of New Orleans making statements about evacuation on CNN yesterday (yes we do have tv in darkest africa!). :dance2:
I was just remarking about Bronwyn and Christy seeming to know each other.

[Barb]

You have TV down there????? :sign0007:Here I thought that you got on top of a giraffe in order to get a wireless signal just to talk to me. What a relief! I was feeling so sorry for that poor giraffe! :p

[ollieholmes]

You have TV down there????? :sign0007:Here I thought that you got on top of a giraffe in order to get a wireless signal just to talk to me. What a relief! I was feeling so sorry for that poor giraffe! :p

I thought it was a hampster in a wheel connected to a Dynamo powering everything :p.

[angel]

I agree with dodger on the issue of your daughter wanting someone else to do things for her. Some of that is just plain being a teenager and of course they have to grow up and do for themselves. The problem is bigger for you and your daughter because she has other issues than most teenagers. Tough love may be the way to go. I have SB Myleo and I always prefered to do for myself. Had I tried to get my mom to do things for me sometimes she might indulge but most of the time i would have gotten a flat out refusal then a reminder that I could do it myself.

I am the same way with my 12 year old. He has SBO and can walk without aid etc.... but he is just a lazy teenager period!!! He would happily have me feed him if i would still do it!! You will be met with a lot of crap from your kid when you just make them do for themselves but it will all be worth itin the end.

Also find a gyno for your daughter with the issues of her period. Most of us handled it like any other woman would and used the pads or tampons. A gyno could have another suggestion if those don't work for her.

Angel

[cutie patooties mom]

Hello Y'all!
We made it through Gustav. We were out of power for 4 days but there was no damage to our home!!! We have a lot of trees down in our area though. And I do know Christy. I recognized right away that she is my friend from spina bifida camp! I hope she is OK!!
It is so amazing to me that Dodger is way over in South Africa but knows whats going on in New orleans. It is such a small world. By the way, we live 45 miles north of New Orleans, on the north shore of the lake.
Bronwyn
:2aa:

[Dodger67]

Welcome to the Global Village.
You'd be surprised (shocked even!) at some of the things I know. LOL!

[Barb]

rofl...we have some goofy fun times on this board!:clap2:

I thought it was a hampster in a wheel connected to a Dynamo powering everything :p.

[kkkmom]

Hey all,
We made it fine through Gustav. Lost power and skirting but alls good.
Roger, Bronwyn's daughter and mine go to camp together but we live 2 hours away from each other I had no idea she belonged to this group.
I appreciate the advise on tough love and I do do tough love but she had rod surgery last summer and is unable to bend and twist. She is unable to get on the toilet byherself and she is unable to hold herself up and pull a diaper out from under her much less anything else.
I was wondering if there is any one else that has expeienced anything like this and what to do. Most of the gyn doctors her don't want to see patients until they arearound 16 so what do you do in the mean time. my daughter is only 12?
Christy

[kkkmom]

Bronwyn,
Have you tried maybe a pad in the goodnights? Maybe don't pull the sticky off and that way at school she can just change the pad when she needs to?
Just had that idea and thought I'd pass it to you.

[Dodger67]

The gyno's convenience and preference is so not your problem!

Discuss the issue with your urologist - if you then still have questions your uro can give you a proper "referral" (dunno what y'all call it over there) to see a gyno.

Her spinal fusion was about a year ago - its about time to just "get over it already". Maybe you should be looking into installing grab rails etc. - do whatever it takes to get her independent in the bathroom.

I hope Gustav's younger siblings didn't cause you too much inconvenience.

[cutie patooties mom]

Thanks Christy, I'll try the pad with the goodnight!

Roger, We have one pediatric urologist in Louisiana. I asked him about these womanly issues and he looked like he'd rather be on Mars!! LOL!

Bronwyn

[Dodger67]

Well then he's exacly the right guy to give you a referral to a gyno.
I feel for him - most guys run for the hills when it comes to those girly issues.

You could of course just have a chat with your own gyno, I'm pretty sure the short answer would be "Just show the kid how to use tampons." <shudder>

[cutie patooties mom]

:connie_mini_lalalal
"I don't think so!"
Roger, If only you were a woman.

-Bronwyn