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jessiesmom12202
09-27-2008, 03:57 PM
On June 16,2008 I went in to have surgery on my right wrist. The hospital did a UPT on me which is done on any female of child bareing age who is going to have surgery. An hour later the dr came back in only to inform my that i was pregneant. I then explained to him that something had to be wrong because i was on the birth controll patch, and had not missed a cycle. The DR than offered to do blood test to make sure.i said yes please do. thirty minutes later he came back and said yes you are pregneat. So no surgery was done.

June 30,2008 I made my first OBGYN aapointment with Dr, B. After talking for some time and going through my medical history Dr.B decided to do an ultra sound, and an HyperCoag Panel. The ultrasound showed that I was 10 weeks pregneat. At this point i was confousied because i was on the BC Patch and still had not missed a cycle.I was also put as High Risk, so DR appointments every two weeks.

July 14,2008 Went back to the Dr.B all of my blood test had come back, was told that i have a blood diorder called MTHFR. I would have to take shots of Lovenox everyday up to six weeks after i have the baby. I was also put on Metanex, which is high doses of Folic Acid. Dr.B also made me an appointment to see a hemotologist.

July 28,2008 Back to Dr.B all is well.

August 11,2008 I had two appointments one with Dr.B then with the hemotologist Dr.H. at the first appointment I found out I was haveing a boy and every thing looked good. was able to leave and go to work. On to DR.H, everything went good with him he just increased the metanex to twice a day.

August 25,2008 went to see Dr.B everything was good.

September 8,2008 Had an appointment with th NP J all was well baby looked good.

September 11,2008 I was haveing really bad paines on my left side. Called Dr.B to see what i should do. They had me come in to see Dr.B. come to find out the baby was sitting on my left syatic nerver and was causeing me really bad pains. Just to make sur they had me do an ultrasound. After the ultrasoun i was placed back in my room and told the DR would be back in to talk to me. About 10 min. later that is when Dr.B told me that my baby has SB. I don't think i heard much after that. He made me an appointment with a OBGYN Specalist DR.G

September !8,2008 Dr.G confirmed what Dr.B had said about my baby...That he has SB

So here we are today...waiteing to give birth.....

I am so glad i found this site because i think i would still be lost on what Sb really is without it.

smoop
09-27-2008, 05:17 PM
Wow.. you've been through a lot. I have a 3 year old with SB named Analise. She functions around L3-4 and uses long leg braces (KAFOs) and a walker to get around. She has shunted hydro, is cathed 6x/day, has scoliosis, and is a complete joy to us.

Hope that you're doing alright.. I feel great empathy to you as you deal with these trials. Hang in there.

XoBLoNDiE85
09-28-2008, 04:54 AM
Welcome! Our youngest is 3 months (Hannah) and has SB. Cathed every 4hrs.....We were sooooo scared and since its still new its scary from time to time but the good out weighs the bad......shes amazing! My prayers are with you!!! Keep us posted....by the way I'm Laura, 23yr.

jessiesmom12202
09-29-2008, 12:36 PM
On June 16,2008 I went in to have surgery on my right wrist. The hospital did a UPT on me which is done on any female of child bareing age who is going to have surgery. An hour later the dr came back in only to inform my that i was pregneant. I then explained to him that something had to be wrong because i was on the birth controll patch, and had not missed a cycle. The DR than offered to do blood test to make sure.i said yes please do. thirty minutes later he came back and said yes you are pregneat. So no surgery was done.

June 30,2008 I made my first OBGYN aapointment with Dr, B. After talking for some time and going through my medical history Dr.B decided to do an ultra sound, and an HyperCoag Panel. The ultrasound showed that I was 10 weeks pregneat. At this point i was confousied because i was on the BC Patch and still had not missed a cycle.I was also put as High Risk, so DR appointments every two weeks.

July 14,2008 Went back to the Dr.B all of my blood test had come back, was told that i have a blood diorder called MTHFR. I would have to take shots of Lovenox everyday up to six weeks after i have the baby. I was also put on Metanex, which is high doses of Folic Acid. Dr.B also made me an appointment to see a hemotologist.

July 28,2008 Back to Dr.B all is well.

August 11,2008 I had two appointments one with Dr.B then with the hemotologist Dr.H. at the first appointment I found out I was haveing a boy and every thing looked good. was able to leave and go to work. On to DR.H, everything went good with him he just increased the metanex to twice a day.

August 25,2008 went to see Dr.B everything was good.

September 8,2008 Had an appointment with th NP J all was well baby looked good.

September 11,2008 I was haveing really bad paines on my left side. Called Dr.B to see what i should do. They had me come in to see Dr.B. come to find out the baby was sitting on my left syatic nerver and was causeing me really bad pains. Just to make sur they had me do an ultrasound. After the ultrasoun i was placed back in my room and told the DR would be back in to talk to me. About 10 min. later that is when Dr.B told me that my baby has SB. I don't think i heard much after that. He made me an appointment with a OBGYN Specalist DR.G

September !8,2008 Dr.G confirmed what Dr.B had said about my baby...That he has SB

So here we are today...waiteing to give birth.....

I am so glad i found this site because i think i would still be lost on what Sb really is without it.


the results from my Chromoanel Amino came back we are haveing a NORMAL healthy male...yeah....will post more later

Barb
09-29-2008, 02:51 PM
Glad to hear your good news but kids with SB are NORMAL too :)

Bigwilli
09-30-2008, 03:03 PM
Hang in there! Our Zoe has a l2-l3 lesion with a shunt but is doing great. There will be days that are harder than others but it will be ok.We were really scared at first but after alot of prayer, educating ourselves and meeting others here we made it. Your lil one will bring you tons of joy. Your in my prayers!

kkkmom
10-01-2008, 02:36 AM
So the baby will not have SB. Then what made the doctors think he would in the first place? They could see on my ultra sound the split in the spine.

cutie patooties mom
10-01-2008, 04:56 AM
I'm wondering why they put her on high doses of folic acid at 10 weeks pregnant. The neural tube is formed by the 4th week of pregnancy. Any benifit from folic acid is not going to happen after that time. Will it??
Bronwyn

Dodger67
10-01-2008, 07:59 AM
Bronwyn!
How dare you doubt the word of the Great Prophet Folate?
Such heresy!
Thus spake the Prophet:
"Verily I say unto you, whomsoever would doubt the power of my elixir shall be taken from the Congregation of the Associates of Spinum Bifidum and be shunned. Whomsoever shall preach such heresy, let their voice and name no longer be heard in the Temple of the Sacred Acid of Folate."
Let the will of the Prophet Folate be done.
:bluesbrothers:

There's an old saying that comes to mind:
"Shutting the stable door after the horse has bolted."

SB has already happened before you even know you're pregnant.

cutie patooties mom
10-02-2008, 12:20 AM
You are funny, Roger! But, exactly right when you said "shutting the stable door after the horse has bolted." Don't those Dr.s know anything???
Bronwyn

jessiesmom12202
10-02-2008, 01:52 AM
Our baby does have SB...when i put we are have a Normal healthy boy i ment that there are no chromosonal defects ...i.e Mental problems.... sorry for all the confusion

jessiesmom12202
10-02-2008, 01:59 AM
i see there is some questions on why i was put on the folic acide...I was put on the folic acid do to the blood problem that i have...MTHFR... I need the folic acid to prevent high levales of Homecystine in my blood... if my homocystine leval gets to high then i have blood clots, and the first place it starts to clot is in the placenta which can be fatel to the baby..

cutie patooties mom
10-02-2008, 02:33 AM
Hi Donna,
I'm sorry! I thought that the doctor put you on folic acid to try to prevent spina bifida at 10 weeks, which didnt make sense. But, now it does. Are you on bed rest because of the blood disorder? This is a lot for you right now. You will be in my thoughts and prayers.
Bronwyn

Dodger67
10-02-2008, 05:49 AM
Donna
We're with you all the way!

Please forgive the somewhat sick sense of humour - that comes from living with SB.

jessiesmom12202
10-02-2008, 12:08 PM
no i am not on bed rest as of yet... thank goodness....i would go crazy if i was....

Barb
10-02-2008, 02:20 PM
AH, ok, all makes more sense now. :)