Must Read

[joybell322]

:fyi: I have been reading the most incredible book. Many of you may have read it already, but I wanted to post the name of it in case there are some of you who haven't: Living With Spina Bifida (http://www.amazon.com/gp/product/0807855472?ie=UTF8&tag=httpchaoticco-20&linkCode=as2&camp=1789&creative=9325&creativeASIN=0807855472) by Adrien Sandler.

I honestly wish I had heard of it before. My daughter is 6 (on Tuesday) and the book has helped me understand her much more thoroughly. Many things in SB kids are linked to the SB, but my doctors have never mentioned them, like visual/spatial issues, ambliopia (lazy eye), learning disabilities especially in math and several other things.

Anyway, just thought that if there is even one of you who has been as lost as I have especially in this last year, that you would might find some answers in that book!

[joybell322]

By the way, if any of you have read other books that have helped you a bunch, please tell me about them!

[Barb]

These are the ones that I recommend and when you buy them through the links below it helps support the site:

Children with Spina Bifida: A Parents' Guide (http://www.amazon.com/gp/product/1890627771?ie=UTF8&tag=httpchaoticco-20&linkCode=as2&camp=1789&creative=9325&creativeASIN=1890627771)

Spinabilities: A Young Person's Guide to Spina Bifida (http://www.amazon.com/gp/product/0933149867?ie=UTF8&tag=httpchaoticco-20&linkCode=as2&camp=1789&creative=9325&creativeASIN=0933149867)

Living with Spina Bifida: A Guide for Families and Professionals (http://www.amazon.com/gp/product/0807855472?ie=UTF8&tag=httpchaoticco-20&linkCode=as2&camp=1789&creative=9325&creativeASIN=0807855472)

The Spina Bifida: Management and Outcome (http://www.amazon.com/gp/product/8847006503?ie=UTF8&tag=httpchaoticco-20&linkCode=as2&camp=1789&creative=9325&creativeASIN=8847006503)

Nonverbal Learning Disabilities at Home: A Parent's Guide (http://www.amazon.com/gp/product/1853029408?ie=UTF8&tag=httpchaoticco-20&linkCode=as2&camp=1789&creative=9325&creativeASIN=1853029408)

Hydrocephalus: A Guide for Patients, Families and Friends (http://www.amazon.com/gp/product/156592410X?ie=UTF8&tag=httpchaoticco-20&linkCode=as2&camp=1789&creative=9325&creativeASIN=156592410X)

You Will Dream New Dreams: Inspiring Personal Stories by Parents of Children With Disabilities (http://www.amazon.com/gp/product/1575665603?ie=UTF8&tag=httpchaoticco-20&linkCode=as2&camp=1789&creative=9325&creativeASIN=1575665603)

Rolling Along With Goldilocks and the Three Bears (http://www.amazon.com/gp/product/1890627127?ie=UTF8&tag=httpchaoticco-20&linkCode=as2&camp=1789&creative=9325&creativeASIN=1890627127)

I have all of them except for the Spina Bifida Management one which is really pricey. I have one VERY similar to that written by Harold Rekate that I don't believe is in print any longer. You can also see a list of the books at the bottom of the forum on the main page

[joybell322]

Very cool! Thanks! Any you suggest reading first? I'm almost done with Living with Spina Bifida. I'll definitely be sure to order through this site!

[trekman]

I have this book and its very interesting. Its tought me things about my SB that I never knew and probably should have. I wish I had it when I was younger since I'm 40 now!

[Barb]

Yes, this one: Children with Spina Bifida: A Parents' Guide (http://www.amazon.com/gp/product/1890627771?ie=UTF8&tag=httpchaoticco-20&linkCode=as2&camp=1789&creative=9325&creativeASIN=1890627771)
and if your daughter is under the age of 8 or so she will probably love this: Rolling Along With Goldilocks and the Three Bears (http://www.amazon.com/gp/product/1890627127?ie=UTF8&tag=httpchaoticco-20&linkCode=as2&camp=1789&creative=9325&creativeASIN=1890627127)

[joybell322]

Thanks for the input! I do have the Children: A Parents Guide though I haven't started it yet. I bought it when I bought the other one. I will get her the Rolling with Goldilocks. My daughter is 6 and loves to read!