Just curious...

[melissa3075]

In my ultrasounds my baby moves her legs and feet......does that mean that she will defintely be able to move them after she is born too?

Also, how is the doctor able to determine the difference between the two types of SB lesions via ultrasound - Meningocele vs Myelomeningcele - they both look sac like, but one has nerves in it and the other doesnt - how can the doc distinguish between the two in utero?

[Summer25]

In my ultrasounds my baby moves her legs and feet......does that mean that she will defintely be able to move them after she is born too?

Also, how is the doctor able to determine the difference between the two types of SB lesions via ultrasound - Meningocele vs Myelomeningcele - they both look sac like, but one has nerves in it and the other doesnt - how can the doc distinguish between the two in utero?

moving doesn't mean to much, sorry. I moved a lot as well and because of that no one knew I had sb before I was out. Not sure how they can tell on ultrasound though.

[smoop]

I actually think it's a good sign that your baby is moving legs/feet in utero. Sorry I can't answer your 2nd question. No idea...

[Summer25]

I actually think it's a good sign that your baby is moving legs/feet in utero. Sorry I can't answer your 2nd question. No idea...

It actually doesn't matter because the baby is floating in fluid mostly, so it is going to move. I had no feeling from hips down at birth. I was also a fairly big baby at 8lbs 7oz. Not the biggest my mom had, but she said I was actually the most active.

[angel]

I would take it as a good sign. The truth is that nothing is positive till the baby gets here. A lot of people were told different things that were seen on the ultrasound that were not accurate once the baby got here (the level of the lesion etc...)

It is easier to move around for the baby i am sure concidering they are surrounded by fluid but your child could very well move his or her legs after they are born. I have L4/L5 (myleo) and the only parts of me that are completly paralyzed are my ankles and feet. I have decent movement in my legs not good but decent. Others with the same lesion are paralyzed from the waist down. It just varies so much when it comes to SB.

Angel

[cutie patooties mom]

Gabi kicked and moved A LOT in utero, but she has thigh movement now (she's myelo L3-L4.)

This is what I was told: After the baby is born and the doctors are closing the hole, that is when the nerve damage occurs. Is that right? It made sense to me.

[Barb]

Carter was said to be L4-L5 when he was born. Now functions more at a L3-L4. We did not know he had SB (despite 6 ultrasounds, long story probably posted somewhere on this board) but I was always worried because he never kicked. He 'swooped'. I could feel him turn over and all and would get elbowed but never the kicking feeling I had with my first.

That being said, the best advice and I swear we need to post a banner on this is:

"Forget 75% of what your doctor is telling you. They are trying very hard but the truth is that until the baby is born, they really don't know what the function will be"

[Dodger67]

Movement alone means almost nothing.
I can move my legs too but they can't support even their own weight.
When I was a toddler I walked with afos and elbow crutches, as I grew the bracing increased until it reached my chest when I reached about 40kg (90lbs). That was at 13 years old then I dumped the whole load of hardware and became a fulltime wheelchair user.

[janjanwhit]

My baby moves his feet and legs a lot. My doctors told me this was in my imagination until they saw it on my ultrasound. I think he must be fairly strong as he kicks my ribs really hard. I think this must be a good sign. I wouldnt put a bet on him walking but I think that he has at least some function now so it can't be ruled out.

[angel]

Movement alone means almost nothing.
I can move my legs too but they can't support even their own weight.
When I was a toddler I walked with afos and elbow crutches, as I grew the bracing increased until it reached my chest when I reached about 40kg (90lbs). That was at 13 years old then I dumped the whole load of hardware and became a fulltime wheelchair user.

This is exactly right. I didn't even think of it from this angle I can move mine but they can only support my weight (and i don't weigh very much) for 20 t0 30 seconds tops. That is giving it everything i have every bit of energy and strength. It does help me in some little ways and I can feel them which helps as well (not as prone to pressure sores etc...)

Angel