new to the site [Archive] - Spina Bifida Connection Support Forum

rach378

02-07-2009, 10:52 PM

I'm 27 and i have always known that i have spina bifida occulta, i feel really alone. I dont know any-one else with SBO.
I live inwolverhampton, i have 2 children and a partner.

cutie patooties mom

02-08-2009, 01:49 AM

Hello Rach!
You have found a great place to find others who know what its all about. I am the proud mother of an 11 year old girl with spina bifida.
Nice to meet you.
Bronwyn

LisaJoy

02-08-2009, 04:22 AM

Hi, Rach -- Welcome to the site. I'm a 44-yr-old college professor with lipomeningocele, etc. Feel free to jump in wherever you want.

Lisa

Dodger67

02-08-2009, 11:15 AM

Hi Rach
Welcome! (sorry I can't do the hug smiley - I'm posting from my phone)

Where is Wolverhampton? I think its in the UK, please add the info to your profile.

angel

02-09-2009, 02:31 AM

Hi Rach,

I am 31 and have SB myleo level L4/L5. My son however is 12 years old and he has SBO.

Welcome to the forum i am sure you will like it here.

Angel

kathy

03-06-2009, 05:03 PM

Hi I am Kathy and I to have SBO. Although I did not find out I had it until I was in my mid thirties. As know medical professional thought to tell my parents or pass this information on to my GP when I was a child. I have been attending orthopedic clinics for most of my life. It did come as a shock to find out the SBO was the reason why I had been attending. Sorry to go on I just need to rant!

angel

03-06-2009, 05:14 PM

Hi I am Kathy and I to have SBO. Although I did not find out I had it until I was in my mid thirties. As know medical professional thought to tell my parents or pass this information on to my GP when I was a child. I have been attending orthopedic clinics for most of my life. It did come as a shock to find out the SBO was the reason why I had been attending. Sorry to go on I just need to rant!

In my opnion it is harder to find out about it when you are older. Like those of us that were diagnosed at birth we didn't have to adapt this was normalfo us from day one which i think all will agree is the easiest wa to go.

Angel

Gymp

03-11-2009, 02:06 PM

Hello Rach,as you can see you're not alone here with the SB.All of us here are affected by it,either having a child with it or having it ourselves,I was born with it 52 years ago.Welcome to the forum!

Gymp