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jayme25
02-18-2009, 07:04 PM
i live in arkansas, im 19 amd my husband is 22 we havent yet been married a year and our little girl kayla has spina bifida and she is due anytime.i need a friend who has a baby with spina bifida!!!

ollieholmes
02-18-2009, 07:51 PM
Welcome to the forum. Im sure you will find plenty of others here to talk to. Do try and encourage your husband to join the forum if he wants to. There is no such thing as a silly question here so ask away.

smoop
02-18-2009, 07:56 PM
Hi there. We're happy to be your friends! There are several SB parents on this board as well as adults living w/SB so you'll cover all the bases here.

My name is Renee and I have a 3.5 year old daughter with SB, hyrdo, and Chiari II. Analise functions around L3-4 (I was told she'd be L1 during ultrasound). She walks with long leg braces (KAFOs) and crutches. We cath her 5-6x/day. She's had 2 surgeries: back closure at birth and shunt at 3 months old. Anyway, nice to meet you and glad you found us.

Dodger67
02-18-2009, 08:05 PM
Welcome!
You've come to the right place.
I don't have a baby with SB - I have it myself.
Take some time to read the various conversations and please feel free to add your own comments or questions.

janjanwhit
02-18-2009, 08:18 PM
Hello. I am 25 and live in New Zealand. I have been married for 4 years. My baby is due on the 28th of February. Was actually supposed to have had my c section by now but it has been posponed twice. Having another boy! It would be really nice for me to have another friend!

LisaJoy
02-18-2009, 09:54 PM
Welcome, Jayme! I'm Lisa -- 44, lipomyelomeningocele (a closed form of sb), 1 brace & crutch, neurogenic bladder, college history professor.

Jannah -- I'm sorry you've been postponed again! Hang in there!

angel
02-18-2009, 10:44 PM
You have come to the right place there is a wealth of knowledge here from parents who's children have Spina Bifida to those of us who have spina bifida ourselves.
I am 31, with spina bifida myleomeningocele, happily married with a 12 year old son who has Spina Bifida Occulta and a 12 year old step son.

Angel

Spiffynikki
02-18-2009, 11:37 PM
Hi! I was 19 when I had my little girl, Lily. She is five now, and she has spina bifida! This a great board and you will find lots of support here.

Sheena51985
02-19-2009, 10:49 AM
Hi and welcome!! I'm Sheena, 23 years old, born with Spina Bifida Myelomeningocele L-5 and Hydrocephalus. I walk with AFO's and I also have a shunt. I've had 20 something surgeries (23 I think). We're glad you joined us. Ask any questions you have. We're always here to help and just listen if you ever need to vent. You've just found a TON of friends who will always be here for you!

~Sheena