Thank you and goodbye

[melissa3075]

I went to see another high risk specialist today and he in fact confirmed that the right multicystic dysplastic kidney has become so enlarged that it is either cutting off the blood supply to the normal kidney or is blocking the ureters that are connected to the normal kidney. He is unable to see the normal kidney on the ultrasound at all and the fluid level around the baby is around a 3 (Normal is 9 and above). He doesn't think that the kidneys are functioning at all and that what fluid is there is being produced by the placenta. He also stated that the heart size in relation to the chest size is out of proportion, meaning that lung development at this point is poor due to the decreased fluid. He said he will be surprised if there is any fluid at all left around the baby at my next appointment. Although our amniocentisis came back 100% normal, the doctor is convinced that a single gene defect has caused all of these problems - he stated that the odds of having two major rare birth defects that are totally unrelated to each other is equivalent to having lighting strike twice in the same spot, so my husband and I will have to see a genetic counselor to find out the odds of something like this happening again should we decide to have more children. We are just going to wait and see what happens - he said the likelyhood of a still-birth is high and if she does make it that she will most likely die soon after being born due to hypoplasia (poor lung development).

I want to thank you all for being so supportive during a time of great uncertainty and anxiety. This is such a great forum with great people and I wanted you to know how much everybody here helped me. Hugs to all of you and I wish you all the best.

[ollieholmes]

Im lost for words here. Im sure we will all do what we can to support you and wish you the best.

[Dodger67]

Melissa
We are sad for your loss. We also have hope that you will be blessed and that you may find a source of strength in the midst of the pain.
:happy065:

[Sheena51985]

I'm not sure what to say..so I'll just say this..hold on to hope..never let go of it..also, we may not know exactly why, but everything happens for a reason..we'll always be here for you if u need us..


Sheena

[LisaJoy]

I'm so sorry, Melissa -- I wish there were other words of comfort I could offer.

[hope&faith]

My heart is just breaking for you, I can't imagine that that there are any words that will bring you comfort right now but please know that I am praying for you!!!!

[Holly]

Awe hun I am so sorry! If there is even a glimmer of hope, try to hold on to that!:happy065:

[printemps]

I am so sorry to hear that -I shall pray for to to have the strength to get through this , take care .

[valmarie]

Please don't let that dr rob you of your hope. You just stand firm EXPECTING her to make it....and to thrive! I personally know of so many babes who have been given grim prognoses who have ended up surpassing every obstacle with flying colors much to the surprise of their doctors!!! I am not going to say anything along the lines of any sympathy because there is still so much to happen so you just stay strong and proclaim her health and healing!!!!

[Barb]

Melissa, you are so welcome and I wish you the best possible outcome.

I think that we are all such fighters here and there are times (not saying this is or is not one of those times) that we need to realize that things don't always work out the way we hope for. Unfortunately when new parents come in, sometimes there really is nothing we can do for them but to be there and offer friendship. This is a hard fought road that we all travel on and we get used to always seeing another way around an obstacle. But one thing this forum has taught me is that occasionally the baby will have something insurmountable. We have seen those who turned out to have anacephaly or many other things.