howdie

[qk2jdge]

hi everyone, wow this is a really nice forum! what i like already is that it has less members which = less craziness. on some of the other forums i have a hard time following or keeping up, but this feels really nice.

anyways i just wanted to express to the site creator/owner 'webmistress' how great the forum is and how much i like it.

hope to get to know you all and chat sometime. sean

[Holly]

Welcome! We hope that it does pick up a little bit ;)

[qk2jdge]

how long has it been up?

[Holly]

It was up for awhile at one point but it was taken down for a little while. So this is kind of like a restart rather that a "new" board lol It only re-opened a month or so ago.

Do you have SB or know someone who does?

[qk2jdge]

asked you that same question in another thread lol.

i have minor SB (occulta) among other things. i wear a brace/restraint device that helps to control it, without it i'd have a host of postural problems. i also have a form of ataxia which over time causes postural loss from my pelvis to upper body and myoclonic seizures that cause my thighs to snap together and lock temporarily without warning (my brace is partially for both of these), atonic seizures and severe high energy hyperactive seizures (what restraint is for). in addition to those i have reflex seizures daily that makes me highly seizure prone from many forms of light and if that wasn't enough, i am highly sensitive to temperature and susceptible to certain types of hypothermia year round.

[Barb]

Welcome and thank you very much for the nice words. I needed that today :D

[qk2jdge]

ahh thanks, i really like this forum but i can see what holly was talking about regarding more people. have you guys announced the site on other related forums/sites?

[Barb]

We would love it if you helped spread the word and help us grow!

[Holly]

have you guys announced the site on other related forums/sites? We are trying!! lol

[qk2jdge]

i'll definatly do it, i chat on tons of forums.

[kali]

welcome
I have a 9 year old son with sb, he walks with braces and has a shunt since birth.
looking foreward to chating also
kali