people of the forum

[qk2jdge]

what are the ages of people who post here, is it mostly parents or are there kids too?

[Holly]

I am 29. What is your age?

[qk2jdge]

wow i can't just put 19 ... says my message is too short, that's a first. i guess that's for anti spamming?

[qk2jdge]

i had to come back and check my age, sheesh i'm so use to saying 19 but i'm actually 20. lol

[Holly]

wow i can't just put 19 ... says my message is too short, that's a first. i guess that's for anti spamming? Yep :)

Did you just have a birthday? lol I wish I could forget 30 was coming ;)

[qk2jdge]

in april so kinda but really i have no excuse. sometimes i just type stuff without thinking, that's my epilepsy or adhd - one of them.

30 isn't bad, 30 is nice now 40 is another story. lol. j/k

do you have SB or do you have a kid that does?

[Holly]

Be careful... Those in their 40's might be upset! lol

Actually neither... A friend of mine has a son with SB. She has taught me a lot about it :)

[qk2jdge]

wow impressive, managing a forum takes a killer amount of time and energy and to do it all for a friend, i hope she appreciates! i'm sure she does.

[Holly]

I never said my friend had anything to do with this forum :p ;)

[Barb]

wow impressive, managing a forum takes a killer amount of time and energy and to do it all for a friend, i hope she appreciates! i'm sure she does.

I am her friend and I own the forum. Holly helps me a lot with my sites. This is one that I have because SB is so close to my heart. My 9 year old son has SB.

There is a pretty equal mix here of parents and adults with SB. Glad you here!

[printemps]

I'm an adult with sb , I am going to be 49 soon yikes !
still feel like a 20 somthing though lol

[qk2jdge]

thinking your young is important, feeling good is important! it all goes a long way.

printemps at what age were you diagnosed?

[eng188]

I'm a 31 year old male with sb myelo at t2.

[Holly]

I am going to be 49 soon yikes !
still feel like a 20 somthing though lol That is fantastic! I am 29 and some days feel 69! lol

[Holly]

I'm a 31 year old male with sb myelo at t2. Welcome to SBC!

[Holly]

I am her friend and I own the forum. Holly helps me a lot with my sites. This is one that I have because SB is so close to my heart. My 9 year old son has SB.

There is a pretty equal mix here of parents and adults with SB. Glad you here! Gee, way to nix my fun LOL. I don't really help. I have just found ways to stand around the place and APPEAR helpful lol

[twiladawn]

was just wondering as a adult if there is any help for sb?I have genitic sb,as a child my mom had me do exercises every night as she would help.she never mentioned i had it but i knew she had lost 6 baby;s to sb then they gave here something to help develop the babys spines 5 more children were bore .
me being the baby of the family,mom got sick while pregnant with me ,my spine was closed when i was born but is very nerrow.As a child i could move around well but as ive gotten older its not so easy.i can still walk which i was told i wouldnt be doing thanks to my mom.Sometimes i get up though and my leg doesnt work ,then after a few minutes it does again.I am on pain meds daily.I just applied for disability and was denied.So i tried to once again work .I worked 4 days 1 week and 4 the next then the doctor had me off >well still off.i really dont know what to do .any suggestions?
thanks twiladawn

[printemps]

thinking your young is important, feeling good is important! it all goes a long way.

printemps at what age were you diagnosed?


At birth Meningoegele S 3-4 , I can walk with afos have loss of feeling below my knees and continence has always been an issue .