people of the forum

[qk2jdge]

what are the ages of people who post here, is it mostly parents or are there kids too?

[Holly]

I am 29. What is your age?

[qk2jdge]

wow i can't just put 19 ... says my message is too short, that's a first. i guess that's for anti spamming?

[qk2jdge]

i had to come back and check my age, sheesh i'm so use to saying 19 but i'm actually 20. lol

[Holly]

wow i can't just put 19 ... says my message is too short, that's a first. i guess that's for anti spamming? Yep :)

Did you just have a birthday? lol I wish I could forget 30 was coming ;)

[qk2jdge]

in april so kinda but really i have no excuse. sometimes i just type stuff without thinking, that's my epilepsy or adhd - one of them.

30 isn't bad, 30 is nice now 40 is another story. lol. j/k

do you have SB or do you have a kid that does?

[Holly]

Be careful... Those in their 40's might be upset! lol

Actually neither... A friend of mine has a son with SB. She has taught me a lot about it :)

[qk2jdge]

wow impressive, managing a forum takes a killer amount of time and energy and to do it all for a friend, i hope she appreciates! i'm sure she does.

[Holly]

I never said my friend had anything to do with this forum :p ;)

[Barb]

wow impressive, managing a forum takes a killer amount of time and energy and to do it all for a friend, i hope she appreciates! i'm sure she does.

I am her friend and I own the forum. Holly helps me a lot with my sites. This is one that I have because SB is so close to my heart. My 9 year old son has SB.

There is a pretty equal mix here of parents and adults with SB. Glad you here!

[printemps]

I'm an adult with sb , I am going to be 49 soon yikes !
still feel like a 20 somthing though lol

[qk2jdge]

thinking your young is important, feeling good is important! it all goes a long way.

printemps at what age were you diagnosed?

[eng188]

I'm a 31 year old male with sb myelo at t2.

[Holly]

I am going to be 49 soon yikes !
still feel like a 20 somthing though lol That is fantastic! I am 29 and some days feel 69! lol

[Holly]

I'm a 31 year old male with sb myelo at t2. Welcome to SBC!

[Holly]

I am her friend and I own the forum. Holly helps me a lot with my sites. This is one that I have because SB is so close to my heart. My 9 year old son has SB.

There is a pretty equal mix here of parents and adults with SB. Glad you here! Gee, way to nix my fun LOL. I don't really help. I have just found ways to stand around the place and APPEAR helpful lol

[twiladawn]

was just wondering as a adult if there is any help for sb?I have genitic sb,as a child my mom had me do exercises every night as she would help.she never mentioned i had it but i knew she had lost 6 baby;s to sb then they gave here something to help develop the babys spines 5 more children were bore .
me being the baby of the family,mom got sick while pregnant with me ,my spine was closed when i was born but is very nerrow.As a child i could move around well but as ive gotten older its not so easy.i can still walk which i was told i wouldnt be doing thanks to my mom.Sometimes i get up though and my leg doesnt work ,then after a few minutes it does again.I am on pain meds daily.I just applied for disability and was denied.So i tried to once again work .I worked 4 days 1 week and 4 the next then the doctor had me off >well still off.i really dont know what to do .any suggestions?
thanks twiladawn

[printemps]

thinking your young is important, feeling good is important! it all goes a long way.

printemps at what age were you diagnosed?


At birth Meningoegele S 3-4 , I can walk with afos have loss of feeling below my knees and continence has always been an issue .

[Emelsu]

I think I am the youngest so far, I am 15 turning 16 this november.

[sean]

In my fifty first year, havin a hoot!!. Still not the oldest (Gymp where are you).
Know of a fellow in his late sixties with SB, spritely old dude, lives in a home for the aged with his mother. Don't know his SB level, he's always known and always walked with canes and always had bladder/ bowel issues.

[sean]

Twiladawn, you the baby, with you there, me youngest of 8.
Easy to feel lost amoung the crowd.
Answers and suggestions, depend on where you are.
Hey, if your having changes in your legs, might be good to get a look at what's going on. An MRI, if you can, I think the best way to look at your SB site.
Have you kept up your mothers excercises?
Sorry not much help, time to practice your mothers strenghts, maybe.

[jenq2006]

I am her friend and I own the forum. Holly helps me a lot with my sites. This is one that I have because SB is so close to my heart. My 9 year old son has SB.

There is a pretty equal mix here of parents and adults with SB. Glad you here!
oh my goodness I am 35 years old I feel ancient now haha
I have Spina Bifida myself.

[ollieholmes]

Im 22, my partner who has SB is also 22.

[eng188]

Wow. I've been on here a while now. I'm 33 (with SB, no partner) until mid-December, at which point I'll be...I forget...34? Does that come after 33?

[Lifeisgood]

LOL. Depends on how you look at it. When I turned 30 last year, my best friend got me a t-shirt that says "I was 29 last year...I am 29 this year...and I will be 29 next year too!"

I am 31 now and proud of it!

[dahliafaolan]

I just turned 24 last month.

[Dodger67]

41, birthday 24th November.:2aa:

[Gymp]

I'll be 53 come November...What part of the month Dodger,1st half or 2nd half? (I'm just curious)

[UNIV]

I was born with SB in 1949 (for the math challanged, I'm 32 :confused: lol)

[Summer25]

I'll be 26 on Sept 18th.

[usolyfan]

I am the mother of a three and a half year old with SB.

[valerie]

i am 30, mum to a 13month old boy...

[angel]

I am 32 years old. I will be 33 in march

Angel

[Frankenswine]

I am 18. :D

[Emm]

I am 75years young and have two greatgrandchildren.:26aa:

[Cubster]

I'll be 39 on the 13th of this month (EEK! Only 1 year from 40!!) and I have a 12 year old daughter with SBO and three younger kids.

[XoBLoNDiE85]

Im 24, mom of 3 girls, Ashtyn 6, Zoe 3 and Hannah 15m (hannah has sb)

[lisawoody]

Hey Dodger you have the same Birthday as my husband but he will be sixty this year.!!!!
I am 45 and we have 10 kids between us 32, 30, 27(twins), 25, 18 (Caitlyn was born with dicolouration over her lower spine), 10 (hana was born with a sacral pit) , 8, 7, and Erin is 6 she has SB

[lisawoody]

I was born with SB in 1949 (for the math challanged, I'm 32 :confused: lol) My husband was born in 1949 and he certainly isn't 32!!!!;)

[NerdaliciouS]

I be 17. :)
Wow, I'm late, hahaha

[eng188]

I went to some "disability support group" meeting at a major hospital here the other day and met a guy with SB who is 79. Very smart fellah, on crutches like me, and actually drives. Seems in very good health, too.