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  1. trying to learn more about spina bifida

    just courious I have the tethering in the spina cord.. not doing the surgery.. when I asked the dr what will happen to me he could not answer me.this is still all so new to us.. and I just live on the computer to research info on this.. but if I asked this question before I am sorry for doing it again, but has anybody just get hit with it in there late 50's? just want to know what to expect .. I read that I will age faster than other people... so if anybody knows anything on this I would really ...
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  2. Mark's Blog

    No, I don't have much pain now. I'n now having to deal with weakness in the arm. I'm not strang enough to spend all day wheeling around in my manual wheelchair, as my stamina is still low. I suggested to the physio that the best part of the day for me to spend time in the manual chair would be the evening so that I would only be a few hours away from going to bed.

    I was advised to get some resistance band to exercise the arm with that would help to strengthen the tendon. I was ...
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  3. Mark's Blog

    Saw physio today, and he has suggested I spend a bit of time in my manual lightweight wheelchair every day to try and strengthen the tendon in my shoulder. I suggested the evening might be the best time for that, so that if I get tired, I will be going to bed after a few hours anyway.

    I told the physio that I had started driving again, but that left-hand turns were a problem. He just said practice would improve it.

    He suggested I get a resistance band to do exercises ...
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  4. melt downs

    I am having a bad day with my emotions... I have so much to be thankful for and I realize it.. Please don't think of me being so self centered when a lot of you have had so much worse than i have. But i am having trouble getting use to the idea i wont be able to go anywhere by myself, or go shopping myself .. even go to church myself.. my walking was so bad today , the stuttering started again.. now the stuttering is gone, walking is so so... but so tired of this.. i was doing fine in aug of last ...
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  5. Mark's Blog

    I decided last night to see if I could manage to shower independently. I did it before going to bed, so that if it tired me out, I was going to bed anyway. I did manage but don't think I am going to manage daily. It might be a matter of twice a week or something.
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