hi dawn
I have found parts of the doctors emails,
. In short, your son's"
neurogenic bladder and bowel due to spina bifida can be
cured by the procedure. I can schedule your son for the
surgery at the end of the year as the earlist in
Shangahi, China. There are too many patients waiting in
line. We operated on 620 kids with spina bifida in 2007
and number is goning to double this year.
Please keep in touch.
Chuan-Guo Xiao, MD
> > This is a research study with 3 years of follow-up
> visits - 10 visits
> in
> > all. The study does not provide transportation or
> hotel for
> out-of-town
> > (country) participants. We would not enroll someone
> that lived as
> far as
> > you. This procedure was developed by a Chinese
> doctor - Dr. Xiao.
> This
> > surgery is now standard of care in China. Dr. Xiao
> has taught this
> > procedure to surgeons all over China. It is done
> everyday in
> hospitals in
> > China. If you really want to have this procedure
> done on your son,
> we would
> > suggest going to China. It would be a lot closer for
> you and would
> not
> > require 10 visits (as it is not a research study
> there). If you are
> at all
> > interested in going to China, I would be happy to
> forward your
> information
> > to Dr. Xiao. I have done this with other families.
> Let me know.
> >
this is parts of the emails I had sent to me, I will continue to look for the other
as I said before I have great feelings about this operation.as for it affecting a childs walking ability later on. the risk is suppose to be so small, but when weighed with the chances of kidney infections, which might lead to the need of kidney transplants,if you dont do anything. which would you chooose? Anyways there is so much thinking that must be involved, a decision that cannot be rushed. I am also researching about adult stem cells, people are talking about it so much on this side of the world. Its available in Egypt , china, and so many other places, I believe it is another area to think about! In the near future I think it will be involved in curing spina bifida
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