SB related organisations directory project
We need everyone to help us create a comprehensive global directory of organisations relevant to Spina Bifida and related conditions.
We need at the very least the name and website but ideally you should say what its purpose is (e.g. Is it a national sb association, local parenting support group, political lobby, etc.) what geographic area it operates in as well as the type of org (non-profit, club, private company, etc.).
Once we have a reasonable amount of info I will edit, sort, tabulate and arrange publication. (Barb we need the wiki.)
Sumus semper in excretum sed alta variat!