I am currently 25 weeks pregnant and at 19 weeks my baby was diagnosed with sb (s4/s5) via our 20 wk ultrasound. This was a huge shock because my bloodwork came back normal. The ultrasound showed no hydrocephalus or chiari II, and everyone seems to think the lesion is probably skin covered. We met with a neurosurgeon at the hospital closest to us and he said it looked like a meningocele. That seemed way too good to be true, so we decided to do the fetal MRI. We live in Chicago so we had it done at Lurie's and got a second opinion. The doctor said that she believed it was a myelocystocele. Just out of curiosity I brought the MRI to the previous doctor and he's standing by his diagnosis of meningocele.
I realize this is all a wait and see thing. My husband and I want to believe it is a better prognosis, but we also don't want to feel blindsided again. I've been trying to research myelocystocele but I'm not finding a ton of info about it. Is it similar to myelomeningocele? What can we expect in terms of prognosis? I have a million questions. Does anyone have any experience with this type and, if so, do you mind sharing with me? Thanks!